Archive for the ‘Patient Concerns’ Category

IS THE CMS STAR PROGRAM RESPONSIBLE FOR RECORD NUMBER YEAR-END DIALYSIS PATIENTS TERMINATED FROM CARE

Wednesday, December 28, 2016 | By arlene | 1 Comment

With the end of the year fast approaching there has been an alarming increase in the number of patients terminated from dialysis care. One has to wonder if these terminations are tied to the implementation of the Star Program by CMS as a way to grade care centers on results of patient care along with clinic reviews. Payments to the Dialysis providers for patient care are tied to this star program….more stars…..more money. Continue reading “IS THE CMS STAR PROGRAM RESPONSIBLE FOR RECORD NUMBER YEAR-END DIALYSIS PATIENTS TERMINATED FROM CARE” »

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Should Dialysis Workers Be Banned From Having Patients as Friends on facebook?

Friday, December 16, 2016 | By arlene | No Comments

Should Dialysis Workers Be Banned From Having Patients as Friends on facebook?

Health care workers at a Dialysis Center were told to remove dialysis patients from their friend’s list on facebook. It appears the center wants to hamper Dialysis Patients and care givers from forming relationship where they might discuss common concerns.

After the large non-profit corporations took over, the patient to dialysis technicians ratios were increased to levels that no longer afforded time for technicians to form a bond with their patients. Those bonds helped patients feel they and the care giver were a team working together for the patients benefit. Present work loads at the major for-profits barely allow time to prepare for the next patient, let alone get to know the patient.

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New Board Member Added

Monday, October 31, 2016 | By William Tinker | No Comments

Lisa Baxter lisa-baxteris a Dialysis Patient and author of “Through the Eyes of a Dialysis Patient” a book on her experiences as a patient. She is President and founder of Blessed Kidneys Connection which she founded in 2010. Lisa has her own Youtube channel dealing with Dialysis issues. She graduated with a Associates Degree from Empire State College. She works in the Social Service Field and loves to work with people. She is an advocate for anyone needing help. In 1995 she was diagnosed with Polycystic Kidney Disease and went on dialysis in 2004. Lisa decided to become an advocate for patients and family members. She produced a DVD “Life on Dialysis” in 2009 her story on dialysis.

 

 

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Marie A. DeFrancesco-Loukas Appointed Director of Public Relations and Patient Education

Friday, September 30, 2016 | By William Tinker | No Comments

Marie A. DeFrancesco-Loukas, is a RN, MSN, CRNP, CRNA Marie joins our Board with over 22 years of experience as a healthcare professional.  marie-picShe began her career in Pediatrics and took care of children with renal disease at Mt. Sinai in New York. Her duties included caring for inpatient dialysis patients.  At Columbia-Presbyterian Marie worked in the Pediatric ICU and cared for critically-ill children in acute and chronic Renal Failure and was a Prisma (CVVHD) instructor; which is a continuous form of dialysis.  She holds a Bachelor of Science from Wagner College, Master of Science from Wagner College as a Family NP, Post-Master’s from Stonybook as a Pediatric NP, Post-Master’s Continue reading “Marie A. DeFrancesco-Loukas Appointed Director of Public Relations and Patient Education” »

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Internationally Known Doctor and Author Robert Bear joins Board of Directors at Dialysis Advocates

Thursday, September 22, 2016 | By William Tinker | No Comments

Dr. Robert Bear has a long history in Health Care Management in Canada and the U.S.

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Practiced Medicine (Nephrology) and was a Professor of Medicine at two Canadian Academic Health Science Centers, University of Toronto & University of Alberta (Edmonton). Held a number of senior positions in both academic and health care administration in each Centre. Established successful health care consulting company (Fresnel Management Ltd), that for over 14 years has engaged in health care management consulting projects independently or with other companies in most Canadian provinces.

Author of “Sorrows Reward”. a medical novel. Invited speaker on health care in Canada and the U.S. Guest blogger on multiple sites. Currently working on a second novel. Dr. Bear’s novel shows his great concern and care for the present state of care for patients, families and the many care givers who are coping with the present RENAL system.

Continue reading “Internationally Known Doctor and Author Robert Bear joins Board of Directors at Dialysis Advocates” »

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Dialysis Advocates Speaks at 2016 Judicial Violence Symposium in New York

Wednesday, August 10, 2016 | By William Tinker | No Comments

Dialysis Advocates was an invited speaker at the Judicial Violence, Race, and Moral Imperative Symposium held July 31 thru August 2nd in Harlem. The Symposium was a gathering of Pastors and Civil Rights Leaders concerned with the current state of Civil Rights in America. Keynote speaker was Danny Glover actor and activist.

Arlene Mullin’s of Dialysis Advocates, powerful presentation on the plight of minorities and the disadvantaged in Dialysis care centers along with the unjust termination dialysis care of these patients was greeted with outrage and shock by those in attendance. Prior to Ms. Mullins presentation a short draft of a future documentary by documentarian Gordon Skinner who has filmed patients’ personal stories of fear and retaliation was very moving. With disbelief of what they were seeing, asking questions and realized that this is real. We now have a National Shout Out to alert Civil Rights Leaders and Activist in their communities Nationwide of the Dialysis

 

March of over a Thousand for Civil Rights July 30th held in Harlem.

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We were invited to attend the March in Harlem. The photo is of those that are recognized as leaders.

 

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250 Million Settlement In Class Action Against Dialysis Clinic Giant

Friday, February 19, 2016 | By William Tinker | No Comments

Fresenius Medical Care has settled a class action suit for Dialysis Patients deaths from use of Granuflo, NaturalLyte a dialysate during dialysis; large numbers of Dialysis Patient were having cardiac arrest or death after receiving these.

The Law Offices of Joseph R. Santoli, Esq. (1-800-279-6996, josephsantoli@aol.com) is reviewing claims nationally for those who’s loved ones died suddenly from cardiac arrest within days or less of receiving either Granuflo or NaturaLyte dialysate additive as part of their dialysis treatment prior to June 27, 2012

Joseph Santoli has worked tirelessly with Dialysis Advocates for the rights of Dialysis Patients

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Rebroadcast of “How To Ask For What You Want” with John Rider….. A Patient Guide

Tuesday, March 24, 2015 | By William Tinker | No Comments

John Rider will discuss how patients can empower themselves and take charge of their own treatment. His insight will help listeners and callers process the difficulties faced by Dialysis Patients and their family. He presently works with Out Patients at High Point Treatment Center in Brockton, Boston.

John is a past National Advocate for the Committee of Ten Thousand which deals with the hemophilia community, living with HIV/AIDS and HCV. He helped get national legislation passed and supported litigants in a national class lawsuit.

Show will be on Thursday March 26 at 9:00 PM Eastern, 8:00 Central and 6:00 PM Pacific

You can listen on line at: blogtalkradio.com/dialysisadvocates or call into the show no earlier than 10 minutes before airtime at: 347-857-3961

Dialysis Talk is supported by Dialysis Advocates dialysisadvocates.com

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Radio show with Dr. Robert Bear-Author of “Sorrow’s Reward”

Sunday, March 15, 2015 | By William Tinker | No Comments

Portrait (1 of 1)Dr. Robert A. Bear, is the author of “Sorrow’s Reward” -interrelated tales from a fictional dialysis unit. While fictional, the stories are too close to the real day to day, lives of patients, Doctors and families. Dr. Bear, author of over 150 medical articles will discuss his reasons for these compelling stories told through the eyes and thoughts of his fictional characters.

 

After many years in Nephrology as a Physician, Educator and Administrator he began to have questions about how Dialysis Care has evolved. Now that many clinics are run by large “For Profit” companies; are the patients, nursing staff and Doctors better off? What can and should be done to improve dialysis care. What are the responsibilities of patients in their care?

This book is a must read for anyone involved with Dialysis from Doctors, Technicians, Counselors, Patient and their families.

Show is on live Thursday March 19, at 9:00 Eastern, 8:00 Central and 6:00 Pacific.

Listen live on line at: http://www.blogtalkradio.com/dialysisadvocates/2015/03/20/lessening-the-suffering-of-dialysis-patients-through-engagement

Call in at:  (347) 857-3961  Thursday March 19,2015.

 

 

 

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Dialysis Patients…… How to Ask For What You Need, With Clinician John Rider

Monday, February 9, 2015 | By William Tinker | No Comments

John Rider will discuss how patients can empower themselves and take charge of their own treatment. His insight will help listeners and callers process the difficulties faced by Dialysis Patients and their family. He presently works with Out Patients at High Point Treatment Center in Brockton, Boston.

John is a past National Advocate for the Committee of Ten Thousand which deals with the hemophilia community, living with HIV/AIDS and HCV. He helped get national legislation passed and supported litigants in a national class lawsuit.

Show will be on Thursday February 11 at 9:00 PM Eastern, 8:00 Central and 6:00 PM Pacific

You can listen on line at: http://tobtr.com/s/7340373 or call into the show no earlier than 10 minutes before airtime at: 347-857-3961

Dialysis Talk is supported by http://dialysisadvocates.com

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