Archive for September, 2013

New Dialysis Infection Prevention pamphlets going out to all dialysis clinics from CDC.

Friday, September 20, 2013 | By Scott | No Comments

Sept. 20, 2013 – We have some new dialysis infection prevention resources going out the door today to providers and patients.  These are being sent in packets to the ~6,000 dialysis facilities in the country.

 Please feel free to share with other patient advocates who may be interested in these materials.


We are very excited to announce three new resources for preventing infections in dialysis patients: a Provider Training Video and accompanying Provider Poster and Patient Pocket Guide.  Please visit our Dialysis Safety website to see these new materials.

Provider Training Video: Preventing Bloodstream Infections in Outpatient Hemodialysis Patients: Best Practices for Dialysis Staff. 

The video is intended to be used by outpatient hemodialysis facilities as an educational tool to help remind their frontline staff, including technicians and nurses, about infection prevention measures. It can be used as an orientation video for new staff and as an annual in-service training tool to remind staff of proper protocols.

Provider Poster: Put Together the Pieces to Prevent Infections in Dialysis Patients

The poster can be posted in staff lounges or on the treatment floor to serve as a reminder of the messages in the video and other important ways to prevent infections.

Patient Pocket Guide: 6 Tips to PreventDialysisInfections

The patient pocket guide is intended to educate patients on ways they can help prevent infections and can be shared as part of an information packet or reviewed with them by clinical staff.

The poster and pocket guide are available for order through our warehouse. The DVD will be available for order starting next week.

Today, we are conducting a mailing to provide one copy of each of these materials to each outpatient hemodialysis facility in the U.S.  We hope you will help promote these materials and encourage facilities in your area to use them.

Please visit our Dialysis Safety website for additional infection prevention resources, including a free continuing education (CE) activity and several observation tools, checklist tools, and protocols.

Thank you for your continued commitment to preventing infections in hemodialysis patients.



Abbigail Tumpey, MPH CHES
Associate Director for Communications Science
Division of Healthcare Quality Promotion
Centers for Disease Control and Prevention
1600 Clifton Rd NE
Atlanta, GA
Phone: 404-639-1125
Cell: 404-259-7064

Dialysis Patients being discharged with no appeal, no assistance from CMS & ESRD

Thursday, September 19, 2013 | By Scott | No Comments

Sent: Tuesday, August 20, 2013 12:21 PM
To: Conway, Patrick H. (CMS/CCSQ)
Subject: Patients being discharged with no appeal.

Dr. Conway,

I have tried to reach you in the past. It appears that there is a trend, that has been going on for years. It has been allowing dialysis units to discharge patients for no cause, even with creative paperwork to discharge the patient unfairly. Then when a patient is discharged the patient is blackballed at any other clinic, denying them entrance. A patient is denied a transplant and used as a payback, by labeling them non-compliant…without the patients knowledge..It is a nightmare to be a patient on dialysis.

CMS promised me that they were not going to allow anymore discharges of patients unless they are violent. These Nephrologists are now dismissing them, because they can. I am getting a record number of discharges myself.

I have one currently in Nashville and have contacted CMS at the highest levels. This patient was dismissed from a Nephrologist from Vanderbilt Medical University, a co-director of Nephrology Clinical trials. Which receives Federal dollars. He is partners with Davita.

These are just some of the discharged patients that are recent, with CMS sitting on their hands. I will not insult you with the fact that the ESRD Networks are the main players in these discharges and provide the legal way to “dump” a patient. I thought they were for quality of care of the patients.

Patients speaking out on care are fearful of retaliation.

Patients discharged have no appeal process and die. CMS has been contacted on every discharge and has sat by and did nothing.

Patients are not allowed to see their charts in many clinic…

If your interested the information is below on how to reach me. I also would invite you to go on and go to patient stories and the news with the radio interviews of patients. This industry has been allowed to do pretty much as it pleases, CMS standing by silent. This is not about healthcare and the money for patient care is going to industry “bonuses”.

I am seeking help for patients getting quality of care and to have rights in these clinics. I have done thousands of complaints, with no help from CMS. It is about time to ensure patients have rights with qualified workers. It is getting where my caseload with discharged patients and abusive practices are on the rise.

Another trend is that we have had patients have full fledged strokes in clinics and the staff will not call 911, but will call the family. Infection control is another area that is costing lives and medicare money. They simply have them go to the ER for care and they are infection free.

Arlene Mullin-Tinker
Dialysis Advocates LLC

Download their reply, it isn’t very comforting.


St. Louis Post-Dispatch Editorial: Cleansing dialysis center of government waste

Tuesday, September 10, 2013 | By Scott | No Comments

Please read this entire article, you’ll be shocked!

St. Louis Post-Dispatch
September 09, 2013 6:00 am • By the Editorial Board

Within 20 miles of downtown St. Louis, there are 25 centers operated by the two dominant companies in the industry, DaVita Healthcare Partners of Denver and Fresenius, based in Germany.  Those companies are complaining that they are under attack by Congress, which has ordered the Obama administration to eliminate more than $500 million a year in excessive drug payments to clinics across the country.


More Reports of Heart Complications and Deaths from DaVita and Fresenius Dialysis

Tuesday, September 10, 2013 | By Scott | No Comments
September 9, 2013, 01:30:00PM. By Jane Mundy

Laguna Niguel, CA: Sons and daughters of parents believed to have suffered cardiac arrest, stroke, respiratory issues and other health problems linked to the use of GranuFlo and NaturaLyte administered at DaVita Healthcare Centers are now considering a DaVita and Fresenius lawsuit.

Although Henry’s mother died in the hospital from cardiac arrest, he knows she was given GranuFlo during dialysis treatments at a DaVita Center. “My mother started dialysis in 2007, and she went to the DaVita Center three times a week without fail,” says Henry. “She got sick about two weeks before she died and was given hemodialysis at her bedside in the hospital. Her blood pressure went down and she stopped breathing; they put her on a respirator and sent her to ICU where she stayed just a few days. Her doctor called to tell me she had massive brain bleeding and passed away.


Radio Show with Chili Most on WVFG 107.5

Tuesday, September 10, 2013 | By Scott | No Comments

Dialysis Advocates has provided Chili Most with a number of patients across the nation to interview. It is an opportunity to have dialysis patients tell their stories, and hearing it in their own word has so much more impact.

If any patients want to be included and tell their story, please go to Dialysis Advocates and Contact Us, you’ll have complete privacy using our form.

Prayers Were Answered

Tuesday, September 10, 2013 | By Scott | No Comments

Thank you everyone for your prayers and support for Thomas in Nashville, he is now accepted in a Vanderbilt clinic. It appears that they had a change of heart, or was it the threat of involving the ALCU? It was a close call that he didn’t die, but he is not doing well…hopefully this will end this insanity. Someone needs to be held accountable.

Again, thank you for your prayers and Thomas appreciates every one. This young man will be able to live, but what about the patients we know nothing of their discharges and inhumane treatment.

If you or anyone you how is being mistreated, contact Dialysis Advocates.  We protect your privacy and it’s anonymous.  Patients have rights, but you must stand up for them.