Posts Tagged ‘Retaliation’

Nephrology needs more compassion—and less compliance

Wednesday, February 10, 2016 | By William Tinker | No Comments

This blog post was made by Dori Schatell, MS, Executive Director, Medical Education Institute on May 29th, 2015. It was originally posted on Home Dialysis Central  

Instead of insisting that people must “comply,” offering understanding and compassion may go further toward helping people take on the self-management role that is so vital to long-term success with chronic disease.

At the NKF Spring Clinicals meeting in March, a comment I was told that someone made at the microphone during a session still bothers me months later. The gist of it was: “Why does all of the responsibility for improving outcomes fall on clinicians—where is the patient in all of this?” [Good point, but it goes on…] “I lose money if my patients don’t reach the quality targets. Why can’t we fine the patients if they don’t do their part?—and audience members applauded!

Really?! We really have nephrologists who believe that punishing patients for not “complying” with their orders is going to improve outcomes? It seems that our community may need a refresher course in compassion. Continue reading “Nephrology needs more compassion—and less compliance” »

Consent to Release

Thursday, December 12, 2013 | By Scott | No Comments

The ESRD Network created this Consent to Release form for a dialysis patient who was having difficulty with her treatment. It clearly states that she can not have any information that was prior to their involvement, and did nothing for her.
 
It also states that they can contact her or me to discuss issues.  If patients read the actual form, it has no conditions and clearly states that the Advocate is the one that they talk to and the Advocate relays the information to the patient

Dialysis – Justice For All on BlogTalkRadio

Wednesday, October 16, 2013 | By Scott | No Comments

Listen to frank discussions with patients, family, Doctors, and Dialysis health care workers about the state of Dialysis in America. Rev. Dr Floyd D. Harris, Jr. is the International President Of The National Network In Action a civil & human rights organization that fights for justice for all people. Dr. Harris is known all over world and speak truth to power.

Visit this BlogTalkRadio site to view Upcoming Broadcasts and Archived Episodes concerning the current situation of Dialysis health care in America.

www.blogtalkradio.com/nnia1

Here are some of the past broadcasts focusing on Dialysis Care:

www.blogtalkradio.com/nnia1/2013/10/16/lets-talk-dialysis

www.blogtalkradio.com/nnia1/2013/10/09/lets-talk-dialysis

www.blogtalkradio.com/nnia1/2013/10/02/lets-talk-dylasis

We encourage patients and family members to stand up for their rights and a better quality of care.

If you haven’t listened to any of these broadcasts live, these interviews have excellent information to help patients, families, and caregivers improve the state of Dialysis care.

Dialysis Patients being discharged with no appeal, no assistance from CMS & ESRD

Thursday, September 19, 2013 | By Scott | No Comments

Sent: Tuesday, August 20, 2013 12:21 PM
To: Conway, Patrick H. (CMS/CCSQ)
Subject: Patients being discharged with no appeal.

Dr. Conway,

I have tried to reach you in the past. It appears that there is a trend, that has been going on for years. It has been allowing dialysis units to discharge patients for no cause, even with creative paperwork to discharge the patient unfairly. Then when a patient is discharged the patient is blackballed at any other clinic, denying them entrance. A patient is denied a transplant and used as a payback, by labeling them non-compliant…without the patients knowledge..It is a nightmare to be a patient on dialysis.

CMS promised me that they were not going to allow anymore discharges of patients unless they are violent. These Nephrologists are now dismissing them, because they can. I am getting a record number of discharges myself.

I have one currently in Nashville and have contacted CMS at the highest levels. This patient was dismissed from a Nephrologist from Vanderbilt Medical University, a co-director of Nephrology Clinical trials. Which receives Federal dollars. He is partners with Davita.

These are just some of the discharged patients that are recent, with CMS sitting on their hands. I will not insult you with the fact that the ESRD Networks are the main players in these discharges and provide the legal way to “dump” a patient. I thought they were for quality of care of the patients.

Patients speaking out on care are fearful of retaliation.

Patients discharged have no appeal process and die. CMS has been contacted on every discharge and has sat by and did nothing.

Patients are not allowed to see their charts in many clinic…

If your interested the information is below on how to reach me. I also would invite you to go on www.dialysisadvocates.com and go to patient stories and the news with the radio interviews of patients. This industry has been allowed to do pretty much as it pleases, CMS standing by silent. This is not about healthcare and the money for patient care is going to industry “bonuses”.

I am seeking help for patients getting quality of care and to have rights in these clinics. I have done thousands of complaints, with no help from CMS. It is about time to ensure patients have rights with qualified workers. It is getting where my caseload with discharged patients and abusive practices are on the rise.

Another trend is that we have had patients have full fledged strokes in clinics and the staff will not call 911, but will call the family. Infection control is another area that is costing lives and medicare money. They simply have them go to the ER for care and they are infection free.

Respectfully,
Arlene Mullin-Tinker
Dialysis Advocates LLC

Download their reply, it isn’t very comforting.

CMS_Response-09-16-13

On the radio with Dr. Kennedy and Reverend Floyd Harris

Wednesday, July 31, 2013 | By Scott | No Comments

Dialysis Advocates has been featured many times on blogtalkradio with Dr. Kennedy and Reverend Floyd Harris – www.blogtalkradio.com/realtalk1dr.  Rev. Harris and Dr. Kennedy are human and civil rights activists who cover news and offer viewpoints on issues of concern. 

This program has been an effective outlet for patients to speak out and tell their stories in a safe environment.

With their help, we are letting the public know what is truly going on in these clinics where patients are afraid to complain or speak out in fear of reprisal and dismissal.

Some of our past programs on Real Talk With The 1 Dr’s

www.blogtalkradio.com/realtalk1dr/2013/07/16/rev-harris-dr-kennedy-interview-patients-advocate

www.blogtalkradio.com/realtalk1dr/2013/06/11/rev-harris-dr-kennedy-interview-patients-advocate

www.blogtalkradio.com/nnia/2013/06/05/rev-harris-dr-kennedy-interview-patients-advocate

www.blogtalkradio.com/nnia/2013/06/06/rev-harris-dr-kennedy-interview-arlene-mullin

www.blogtalkradio.com/nnia/2013/06/07/rev-harris-will-have-open-mic-night

www.blogtalkradio.com/realtalk1dr/2013/05/22/rev-harris-dr-kennedy-interview-arlene-advocate

www.blogtalkradio.com/realtalk1dr/2013/05/15/rev-harris-dr-kennedy-interview-arlene-mullin

PATIENT CONCERNS ADDRESSED IN MICHIGAN DAVITA CLINIC

Friday, January 25, 2013 | By arlene | No Comments

1-17-2013

Hi Arlene!

I wanted to thank you again for helping us with Phillip’s dialysis care at Davita, in Clarkston Michigan. I wanted to share with your readers our story, as well. Phillip, my husband has been on dialysis for 5 years and is very vigilant on trying to maintain his health while suffering end stage renal failure. Phillip’s story began in late 1999 when he was in full renal failure after being put on medicine for gout. This medicine created protein kidney stones that blocked his urethra and cut off the blood flow to his kidneys. Going on dialysis was definitely scary for us but after he had been placed on dialysis he had improved and started to feel better. He soon suffered a heart attack and had to have emergency Triple bypass surgery…

Continue Reading: PATIENT CONCERNS ADDRESSED IN MICHIGAN DAVITA CLINIC

MEETING WITH MICHIGAN DAVITA HAS POSITIVE RESULTS

Friday, November 16, 2012 | By arlene | 4 Comments

We met with the Clarkston, MI Davita clinic to discuss concerns raised by a patient. We were a little amused to be greeted by an armed guard.

The patient felt concerns with his treatment were not being listened to and that he was being retaliated against by voicing those concerns about care issues. In the beginning the meeting was tense, but the outcome was what the patient wanted. He had a chance to voice his dialysis care and how he felt retaliated for expressing any concerns.

The Davita Corporate Regional manager in attendance, I found was actively listening and took notes.  I found her easy to talk with, was open minded, and not feeling attacked. I think she also now is more aware of how patients feel about their dialysis experience at Davita clinics.

The Medical director was also present, open to suggestions, listened to the patient’s feelings. The patient explained how he felt about his care. I do feel that after leaving the meeting the Nephrologists understood more about patient feelings and fears, and will be more receptive to patients needs in the future.

I felt the Social worker was the most empathetic of all. She apologized to the patient and realized that many patients feel threatened when they are undergoing dialysis and someone in authority is talking to them. The patient explained how he and other patients fell with someone towering over them while restrained during dialysis. I feel this is a major issue with most patients, standing over a patient, questioning them, is intimidating. I have a feeling the Social Worker will approach patients differently.

We feel this clinic is receptive to the need for patient/clinic relation changes.

The patient we advocated for has a voice and is being heard and respected. He reports that his care has greatly improved.

It took a brave patient and a brave spouse to speak out on care. We really did meet 2 new friends.

Davita Clarkston, MI gets high marks for meeting with us and listening to our patients needs. We hope that this is small opening in the Davita Corporate Wall and may lead to better a better understanding of what their dialysis patients concerns are, and willingness to work with us to that end.